So the other night my husband and I were comparing the number of seizures I had after the skin graft operation last February and also how many I’d had since my finger operation. In both cases they’d reduced significantly. We wondered if it had something to do with the strong pain killers I’d been on. When I went to Prince of Wales the other day I mentioned this to the woman who is in charge of my VNS, and she said no, it’s actually general anaesthetic that can reduce seizures for a couple of weeks in some people. And interestingly, the reverse effect on others. I found that really interesting and so of course now would be quite happy to have a general anaesthetic once a fortnight or so to stop the seizures 🙂
So it was nearly two weeks between my last seizures and I am pretty happy about that. I had three within two days this time. The first one was walking Lilly home from after-school care, and I am describing it for two reasons, one because of the kindness of strangers, and two because of the cleverness of Lilly (again). Lilly got quite upset apparently, mainly because she couldn’t sit me down anywhere which is what she likes to do if I have one. So she found a woman on the street and asked for help. She gave her my phone, and somehow (I’m still not sure what the conversation was) my mum was called and Stephen was texted. By the time all that was done I had recovered, so we found our way home. I’m so glad Lilly had the sense to ask someone for help, and the someone was a person nice enough to do so. But I was still a little confused, and had told Stephen that a friend of mine would be driving us home (who I worked with, but he had gone home hours ago and why we would need a lift I have no idea because we were one street away from home). Crazy brains, right?
One of the other seizures was kind of funny. I was picking up Lilly from school, this time at the normal 3pm, and I have no idea when the seizure came on or what I did, but when I came out of the seizure I remember sitting on the steps in the school playground surrounded by about four teachers all looking down on me. I felt like a naughty school girl! Kind of embarrassed by this one simply because I don’t know what happened during the seizure. And I can do some pretty weird stuff sometimes. Oh well, there’s nothing I can do about it. As long as it doesn’t affect Lilly’s schooling 🙂
All for now, bye!
my-epilepsy 
It sounds similar to sleep walking. You wake up and have no idea why you are where you are. Maybe seizures are random sudden “sleeps”? In sleep your consciousness goes and your automatic systems take over. Perhaps we could change the name to having a “sudden dream”.
Yes. The kindness of strangers can be amazing, just like you sis 💜💜