my-epilepsy

staying sane with day to day life…having epilepsy

It’s just not working

on July 29, 2012

I’ve known that for quite some time now but after only five days between my last two seizures, I decided to call my neuro and finally say- “I want out”. There is just no point to these drugs. So I have an appointment in a couple of weeks to arrange a ween off this drug and a discussion of whether to replace it with anything.

So I’m happy about that. Also, happy I have got some work coming up. Some contract work. A nice way to get started back into the world of employment!

I’m sitting here watching the Australian Female Gymnasts. Bloody hell, they are amazing. I know it’s not a hugely highly regarded Olympic sport (or is it, I don’t really know) but they are so talented I can’t get over it.

That’s all really. Just crossing all my fingers that whatever decision is made next will work 🙂


3 responses to “It’s just not working

  1. Kevin Cox's avatar Kevin Cox says:

    What are other things that can be tried?

  2. donnas72's avatar donnas72 says:

    Well I think I’ve tried most of them by now. As you know I have the VNS inserted, I also had some tests a few years ago to see if they could remove the part of my brain that causes the seizures. The result of that was no too risky to try. It’s really just a matter of waiting for new drugs to come on the scene and try those!

  3. Kevin Cox's avatar Kevin Cox says:

    Are there “brain exercises” where we can train another part of the brain to take over?

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