my-epilepsy

staying sane with day to day life…having epilepsy

Almost a seizure diary really…

on June 15, 2012

Yesterday was my “due date” for a seizure, as they seemed to be happening every Thursday. But yesterday passed and woohoo!!!! no seizure.

But early this morning – boooooooo – seizure. Just the same old complex partial, however this time I was mean to my little girl. Well, I didn’t hurt her and I didn’t yell at her, but apparently I pushed her out of the way when I woke from my post-seizure doze. I feel so horrible, and this is just the icing on the cake now when it comes to asking my doctor to take me off these drugs, as they are of absolutely no benefit whatsoever.

I’ve decided that I have ‘drug resistant epilepsy‘ after reading this article –  CAN YOU PREDICT WHO ARE LIKELY TO HAVE DRUG RESISTANT EPILEPSY?. And I can learn to accept that, and not keep hoping that one day a new drug will come out that will work for me. Such is life, it’s who I am and there are a lot of worse things that I could be suffering from.

I’m going back down to my morning hang-out shortly, my local pub. Sounds terrible I know as it is not even 10am. But it’s not to drink alcohol, I promise! It’s to have my morning coffee with my good buddy the publican Brandon. This morning is his shout, and he’ll be back from the shops/cafe shortly. Thrilling news I know, but he is a wonderful person and is a real help on my seizure days. As I have said previously, I am not very comfortable being alone on days when there is a good chance I will have a seizure (although recently there hasn’t been more than one a week). And Brandon is a great person to be around, he is funny and also very helpful with advice on various issues. So as dodgy as it sounds, on the way home from dropping Lilly off at child care, I call in at the pub for at least an hour or so. WITH TAKE AWAY COFFEES!!!!


One response to “Almost a seizure diary really…

  1. Weather changing, new seasons can have an affect on seizure causes. Try to see what’s different about ‘Thursdays’. Even the most subtle differences can strike a seizure.

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