Awesome title right? Unfortunately not so much in regards to epilepsy control. I’ve tried so many I’ve forgotten a lot of them now. And anyway I don’t know if I’m allowed to mention the actual names so I’ll just refer to them as “these ones I was on once”.
So right now I think I’m on a record number of tablets a day. A total of 12 – five in the morning, seven at night. Three different drugs. With my newest addition I’m actually doing well in regards to lack of side effects. All I have is tiredness – but not much more than I do normally, and my appetite is a bit odd. My neurologist said they had similar side effects to some I have been on before which caused some awesome weight loss, but I don’t think these are going to do the same (dang). Some days I have absolutely no appetite (woohoo!), but other times I have a completely normal appetite (which is rather large – bum!) so I can’t see any weight loss happening (sigh, I’m so female).
Some other drugs I have been on before have totally emptied my head, so badly that I had to call my neurologist and request to stop taking them. I just felt completely brainless (yes even more so than normal, can you believe it!!!!) and could hardly stay awake. Also I couldn’t walk straight – looked drunk most of the time. BAD.
Several other drugs I’ve taken have played badly with my eyesight. I’ve had diplopia (double vision) very severely. A suggestion of getting by in the outdoors by a good friend was to colour in the inside of one lense of my sunglasses and that worked really well. For some reason if I shut one eye I was ok, but when both eyes were open I saw two of everything. I had a very kind colleague actully help me up and down the stairs at work, something I could not do myself. And to mix these drugs with alcohol, even small amounts, was a big no no! I’ve had two embarrassing public events…
The first one was years ago, before Lilly was on the scene. I was with some friends after work at a pub and I made the mistake of having ONE drink, and taking my tablets. And I fell asleep on a colleague’s shoulder. I was shrugged awake, then walked zig zag across to the bathroom. A pub employee came over and kicked me out with the assumption I was totally pissed.
Second time was only a couple of years ago, and again, one drink and tablets together. I felt so incredibly unsteady and when I got up I nearly fell over. My poor friend I was with, totally sober, helped me out. This time the restaurant’s employee was very kind, and she raced out afterwards to see if we needed her to help get me a taxi. Embarrassing or what!!!!
So that’s my drugs. Oh and of course, being female again, the worst ones were my first ones which added almost 10 kilos to my weight. But luckily they didn’t even control my major seizures so they didn’t last too long.
I just cross my fingers that one day, I’ll find a combination of drugs that will completely control my seizures and I’ll get to do stuff like drive again. One can always dream!!!!
my-epilepsy 
You are the best blogger EVER!!!