Yes there’s been a big gap between posts. We went down South to see Stephen’s family in Canberra. It was cold!!!!! I should not complain about the temperature, I will always remember what an ex-colleague (you know who you are) told me the winter temperatures were where she comes from (-25) so why on earth am I complaining about +6?????
So what did we do there? Mostly we ate. Ate. Oh, and we ate as well. The most fantastic food you could imagine. I just love the food at both Stephen’s parent’s and Stephen’s sister’s houses. I wish I enjoyed cooking, and I can’t even use epilepsy as an excuse for not cooking. It’s just pure laziness. I’ve never liked cooking. I don’t mind following a recipe now and then, but I have to follow it word for word and I just find it tiring. I wish I wasn’t like that. Oh well. Lucky that cooking skills runs in Stephen’s family and my husband himself is a fantastic cook.
Tomorrow I am due to have a seizure or two or three if this routine keeps up. I think I am going to stop taking these drugs. I’m seeing my neuro in 3 weeks and I’ll tell him if anything they’ve worsened my seizures. Plus Stephen has said that I have become very “vague“. I hadn’t noticed that but I guess it’s something that only gets noticed by others. He said he is worried about me a lot because my replies to conversations have been slow and sometimes I’m just not there, almost like I’ve been in a seizure.
I realised when he said that, that he’s never known me as someone without epilepsy. He’s only seen me as someone on different drugs, and how they have affected me. Some have side effects that affect Stephen just as much as they affect me (and now Lilly too). It must be pretty hard – reverse the roles and I think I would have trouble being married to someone with epilepsy. So once again, thanks Stephen, for putting up with the various Donna versions you have to live with. Wonder what he’d think of me if I took none? I asked him that, and he said, he probably wouldn’t like me 🙂
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