my-epilepsy

Yep, I think September was my last post. Tut tut tut. So, what has happened since then. Lots I’d say.

Firstly, I have decided to go back to uni. UNI??!! OMG!! What was I thinking? But the closer it gets to start date, the more excited I get. Masters in Social Work at CSU by distance. Two years full time. Starting March 4th. I feel pretty ready, I even bought a new computer – a MAC!! And I love it, so hopefully that’ll help me enjoy the course. I have enrolled in two prep courses also- one on how to study online and one to freshen up on writing for university (cos it’s only been like, er, 20 years, aahhh!!). So I will be starting those next week. 

I turned the big 40. In Fiji with Stephen and Lilly. And that was an awesome birthday. Very relaxing and fun. And I don’t care about my age. Big deal. But ask me again in ten years 🙂

Lilly is now in pre-school, her last year before big school – another AAAAHHHHH!! She’s growing up. Christmas was lovely up in Queensland – I loved being around mum, and I think she appreciated it. Stress free Xmas day.

Seizures? Very regular at the moment – at least one a week. I’m fully back on Frisium so I don’t know if it’s that drug, or just the seizure type, but I often seem to be overly tired again after the seizure, especially if it’s the second or third one. Lots of sleeping. But other times I am straight back into the swing of things. These are the type I hope I have when i am studying. 

Last time I went to my neuro he had no suggestions for me. I think I am a lost cause in his mind. Until a new super drug comes out I will just have to deal with things the way the are. That sounds depressing but it’s OK. As i always say, it could be so much worse, I should be happy with my current situation. 🙂

I haven’t posted for more than a couple of weeks now. So what’s been happening? Quite a bit for me I guess. Actually I did write a post last week but I lost it when I tried to publish it – not sure about this wordpress business. And I got the shits and couldn’t be bothered to re-write it all over again.

So what’s my current situation. I’m sitting here on the couch at 9:30am Sunday morning with Lilly fast asleep next to me and Stephen reading one of his million work books on the other side of Lilly. No wait, he’s playing a game on his iPhone. Poor old Lill, she’s sick. There has been no other Sunday this time I can think of since she was a tiny baby that she’s been asleep. She’s been up since 5:30 throwing up; threw up last night too. I guess some sort of bug. I really don’t want her to pass it on!!!! Poor thing, but, it’s just so lovely and quiet when they’re asleep.

Mum was here, went home on Monday, it was sad to see her go, but Ali and I will be back up there in a few weeks so not long ’til I see her again. We had a lovely few days together. She witnessed a seizure, a very small one, but what she said was nice was that Lilly stayed with me the whole time, stroking my cheek and saying, ‘are you ok mummy?’. I love that, makes me so happy and proud of her. I had gone ten days between seizures so that was impressive.

Unfortunately then there was only six days ’til the next one, a couple of days ago. This is a kind of funny one that I can laugh at. Lilly had gone to bed, which I’m glad of, cos she would just think her mother was a weirdo. We were watching TV and I evidently started singing and dancing while still sitting (Stephen does a great impression, we both wish he’d recorded it). Then, as he’d realised I was having a seizure, Stephen paused the show we were watching. This apparently confused me greatly and I stood up and tried to figure out how to get the lady on the show moving again. To quote Stephen I was waving my hands across the TV saying “how do I make her move?”. Quite funny to watch I imagine. Once again, wish I’d seen it!

So there’s the epilepsy situation. No different. New topic – I’ve got some work coming up, just some sub-contracting work doing research, so that’s made me happy. Not sure when that starts but soon. That makes me happy. Still researching the occupations of the world to come to a full decision about what I want as my new career.

Oooh Lilly has sat up. Better go. I won’t leave it so long next time.