my-epilepsy

I almost did all of April without a seizure. But unfortunately yesterday I had one at lunchtime. I was so disappointed. I nearly did six weeks without a seizure. That’s the longest time since the first nearly three months after the surgery. But I didn’t get excited, I wasn’t hopeful for no more ever, I was just hoping I could make it through April.

The seizure came on top of some disappointing news from a job interview I’d recently attended. I didn’t get the job. And it was the first job I’d felt a bit confident about after I left the interview. Both people who interviewed me were really friendly and seemed to be really interested in everything I had to say. And when I left one of them sad she hoped she’d see me again. So I left feeling I had a chance. I don’t often leave interviews feeling that pleased. I just received a stock standard thanks but no thanks from HR so  am going to contact them today to get some feedback.

Today I am also going to contact a recruitment agency for people with disabilities. I did a lot of research for the job I just didn’t get, and one of them was the recruitment agency. There were lots of testimonials from a wide variety of people with disabilities, with great jobs, one woman even said she was a social worker! I don’t see why I can’t have them help me find a job. I don’t know how well they are working in today’s climate but I would definitely not feel nervous talking to them about epilepsy.

So I feel quite positive. Except for the upcoming weather. Tomorrow’s maximum temperature is going to be 7 degrees! NO!!! But we do have the heater on in the house now which is delightful. But my dear husband reckons 7 is nothing, not cold. But I promised I wouldn’t complain. I will be tough. Maybe. I’ll do my best!

Well we’re certainly living in a new world. Lilly is working online at home for school. Today is day 3. She seems to be taking it well. I do see how distracted she gets. What every teacher she’s had since Kindy has told us. But she has some great ideas and is certainly happy to speak up and ask questions and give feedback. She has a daily Zoom meeting with her teacher and the rest of the class. So that’s great.

I’m almost three weeks since my last seizure. Dr Wong called me and told me to get a blood test to see what the dosage of Tegretol was like. I had a chat to Jenine at POW and she said yes definitely do it, it might increase the dosage and turn one seizure a month into 0 seizures! So I made an appointment with my GP here and it was by phone only, and she emailed the request to Dickson Pathology. I felt a bit nervous going there, but when I got there it was fine, there was no one there. Haven’t heard back from Wong or the doctor here. Will call Dr Wong today.

I had a drink with a Sydney friend on Saturday night, by FaceTime on our phones. The only way to see a friend. It was fun. I was thinking how life hasn’t changed so much for me, because I didn’t get a job, wasn’t socialising much because I don’t really know anyone. So it must be a lot worse for my husband and daughter. And everyone else. So in one way it’s good I guess, but in another way it’s sad. I am not seeing Stephen’s family or my next door neighbour. But I never managed to get myself more friends yet to miss. Still miss my Sydney friends.

I’m going to head off and keep looking for jobs. There aren’t many. No surprises there. But doesn’t hurt to look. Bye!