So, the fingertip is gone! Lilly renamed the pinky Calo, which stands for Cool Awesome Little One. And it is little indeed. It was supposed to be operated on yesterday, but last Monday the hospital called and asked if I wanted to do it that Friday. My first reaction was no, too soon, and I was supposed to be going out for dinner the following night with Stephen for our anniversary so we wouldn’t be able to because I’d be on painkillers that wouldn’t allow me to drink (priorities!!). But my sister was with me when I got the call and basically told me not to be so ridiculous, surely we could have dinner the following week. She was right, of course.
There was another issue though. My Vagus Nerve Stimulator (VNS) needed to be turned off because it is not able to be active during general anaesthetic. I needed to get to the Princes of Wales hospital to have it turned off but I knew the woman in charge of it was on leave. Luckily I managed to find someone else to do it in the meantime. So I was booked and off I went on the 4th March!
One interesting thing happened after I had the VNS turned off. I had a seizure and apparently it took me a lot longer to recover. This I feel proves that the VNS is good for something. It doesn’t reduce my seizures but it certainly helps me recover quickly.
So all is good right now. I’m working on a job application right now that I’m feeling positive about, but I’m not saying anything more! My finger is recovering well; the stitches are coming out on Monday. Then following that on Monday I’m going to POW to get VNS switched back on, and to discuss getting copies of all the MRIs, EEGs etc that I need to take to Brisbane (which is only three weeks away!!!).
Stay tuned…

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