my-epilepsy

Wow once again it’s been too long. I do have an excuse for some of the time though, as you will read shortly.

Still about ten days on average between seizures. No change there. However I did have the seizure of all seizures, and it is only now, three months later, that I can talk about it without getting emotional.

One night back in February I was cooking dinner for my daughter, eggy bread, or egg in the nest as we call it, with a big heart shaped hole cut in the middle of the bread for the egg. Frying away, which I’ve never considered a danger, until I had a seizure (I don’t get auras). I lifted the frying pan off the gas stove, with my pinky finger lingering in the flame, then just stood there in the kitchen holding it for a while, until I decided to put it on the floor. Of course feeling nothing, because for some reason all senses are turned off during a seizure. Little Lilly was watching this with curiosity/fear/concern and then realised what was happening and ran to get daddy. At this point I was apparently lying on the couch with my hands in the air. I think, I’m not sure. Anyway they took me to the sink until they realised perhaps hospital was the place to be. My first memory was sitting in the car with my hands cooling off at the air-con vents.
RPA, our closest hospital, ran cold water over my hands until they were numb, then gave me some amazing pain killers and sleeping tabs and said to call Concord hospital first thing in the morning. They are the burns people.
Three days later I had a skin graft operation on several areas of both hands. My right hand was/is much worse than my left hand. And of course, I’m right handed!
So, that was early February. In May now, I have a perfect bandage free left hand with just a few scars. My right hand some fairly ugly scars and a very ugly pinky finger with no fingernail :-(. My challenge is to make a fist with the right hand which I still can’t do. But I am motivated, I have some painful exercises to do but I’ll get there!!
And the good news is….I am not allowed to cook anymore! 🙂 Got to find positives, right!? I’m just starting to clean now, which as silly as it sounds, actually pleases me because for a while I was unable to do anything at all. I was sending text messages with my feet!
Anyway there’s my big seizure story. My husband was wonderful taking care of me in the first month or so when I was absolutely helpless. And my daughter is also very sweet and supportive. I couldn’t have got through it without them.
No doubt, with the dreadful inconsistency of my posts, by the time I write my next one, I’ll be fully recovered. Bye for now!

About week 3                                                                      About 2 weeks ago!