my-epilepsy

It’s Christmas eve and today I had my first seizure in two weeks which is pretty awesome. I think I jinxed myself though by admitting to a couple of people that it has been “ages” since I’ve had a seizure. It seems to happen all the time whenever I do that. My new policy is to just keep my mouth shut. From now on, if someone asks about how often I have them, I’m just going to say, oh it varies.

Im still transferring to topamax and lamictal, and I’ve noticed that now that my topamax dosage is increasing, my ability to speak fluently is decreasing. (And yes it took a while for me to come up with how to say that sensibly, and I’m still not sure it makes sense :-). Seriously though, I get stuck more often in the middle of a sentence on a word that I just can’t think of. Words as simple as “president” or “Bluetooth”. And I remember this now, from previous times I’ve taken topamax. But hey, less seizures and sentence struggling is better than more seizures and word memory. But ask me that again in March when I’m back at uni and words are very important.
Anyway, merry Christmas and happy new year! We’re enjoying the heat of Brisbane but also the pool at mum’s complex (except of course today was not a good day for me to swim so I sat on the side and watched the fun). Lots of food tomorrow no doubt then of course back to the diet- hahahah!!!!

Well this is the third time I am writing this post. This keeps crashing I don’t know why – maybe it’s cos I’m using my phone. But it’s nearly 11pm so I’m not taking any chances. So this is a boring comeback post but just wanted to say two seizures today- ten days since last one. Cos changing drugs was hoping for more time between seizures but I’ll get there when I’ve made the full switch. Gotta think positive! And now that Lilly is older she is awesome in her support. Hardly ever gets upset now. Just explains it to me afterwards the way Stephen does. Like this morning, she described the way I ran to the corner of the dining room and hid when she got out of bed. She just thinks it’s kind of funny now, but at the same time she knows she has to be there for me.
I was going to go on about uni, considering it’s been two years, but I’m too worried the post will crash. Let’s just say I’m enjoying it and am sure I made the right decision. Two more subjects to go. 😀
Ok enough for now. More later.

Merry Christmas! Lilly’s gingerbread house !

Wow. I’ve really taken a break haven’t I? So much to catch up on. Well. I’ve been at uni for two years. Nearly finished. Two subjects to go! Then I’ll be a social worker. And I’ll have to work. Work? What’s that? Seizures still occur as per usual. I went on a drug trial for nearly a year and it did sweet f.a. I’ve asked to try topamax and lamictal again and the weening process is very slow but it’ll eventually finish. Lilly has nearly finished her first year of big school!!! Such a grown up girl now. I promise I will start sending regular posts again. Bye for now!