my-epilepsy

staying sane with day to day life…having epilepsy

How do I look?

on May 15, 2012

Spent quite a while today trying out different themes for this blog, until I found this one. I think it works because it’s cheerful yet not cheesy. I tried a couple of others but they just looked dark and mysterious, which is certainly what I personally would never be described as and also what I would never want to describe us people suffering from epilepsy as. So bright and cheery  – which is more like me, and well no I wouldn’t say epilepsy was particularly that way, but I am trying to ensure it is not depressing. So there.

Speaking of the term ‘epilepsy’ and describing myself as someone who suffers from, or has the condition ‘epilepsy’, I feel this is the way it should be described. I get goosebumps of anger when I hear term “epileptic” as descriptive. I am NOT epileptic! It just sounds so horrible and it kind of labels me as someone of that nature full stop. “Oh, epileptics are… blah blah blah”.

NO NO NO! Do people with depression get labelled as “depressed people”? No, well, not that I’ve heard of. Epilepsy is just one part of me. I’m lots of other things, and no of course they’re not all wonderful things, in fact I’m sure I’ve been called all sorts of things, but just please please don’t ever call me an epileptic. GGGRRRRRR!!!!!

Thanks 🙂 Now that that’s out of the way, lett’s move on to happier things. I’ve passed the “one week” without a seizure! Yay! But to be realistic, just means I’ll probably have one in the next day or two, but still, it was less than a week the past couple of weeks. On that note, I’m going to go to bed because it’s 10pm (OMG!) and I’m tired. Goodnight!


Leave a comment